DebRA's 12th Annual Mats Wilander Celebrity Tennis and Golf Classic Raises Awareness and Hope for "Butterfly Children"
Tennis greats, Mats Wilander, Jared Palmer, Thomas Blake, Leslie Allen and many other pros were in attendance playing rounds of tennis last Monday at the 12th Annual Mats Wilander Celebrity Tennis and Golf Classic to raise EB awareness.
- New York, NY (1888PressRelease) October 29, 2010 - Tennis greats, Mats Wilander, Jared Palmer, Thomas Blake, Leslie Allen and many other pros were in attendance playing rounds of tennis last Monday at the 12th Annual Mats Wilander Celebrity Tennis and Golf Classic. The golf course was also filled with seasoned golfers who came out to enjoy a wonderful day with friends and family while supporting a worthy cause. The fun continued into the evening when more than 200 guests wined, dined and danced at the exclusive Westchester Country Club. Though everyone was in great spirits, all were aware of the greater purpose- to raise greater awareness and funds for the Dystrophic Epidermolysis Bullosa Research Association of America (DebRA). DebRA is the only national non-profit organization dedicated to research and providing supportive services to Epidermolysis Bullosa (EB) patients and their families. EB is a rare, painful and incurable genetic skin disease that affects more than 30,000 Americans-mostly children.
One of the most memorable moments of the day was the heartwarming speech by Spirit Award recipient, Corinne Meirowitz of Princeton Junction, NJ. Her father, Dr. Robert Meirowitz, a member of the DebRA Board of Trustees, stood up and proudly congratulated his daughter for her extraordinary strength and positivity while living with EB. Corinne is currently in college with friends and a busy workload. Her positive outlook and her ability to not let EB control her happiness was inspiring to all who attended. DebRA was also happy to honor Babe Rizzuto, VP of Public Relations at Conair Corporation, whose steadfast support of the organization and cause has helped to grow its programs and services. Also, in attendance were local EB families and children whose smiles lit up the room.
DebRA's Executive Director, Mary Sprague says, "After 30 years, research for EB has come a long way but we are in the fight for a cure. Every time you meet a person with EB, you are awed by their strength and ability to endure such a painful and debilitating disease. People need to know that each year, many babies are born with EB, families struggle with the emotional and financial costs of the disease and the need for widespread medical knowledge is still here. We can't do it alone, so we are thankful for our community of supporters, and especially at this event."
This week also marks National EB Awareness Week to spread greater awareness about Epidermolysis Bullosa. The community is rallying together so that EB isn't known for being "the worst disease you have never heard of." For more information, please contact DebRA at 212.868.1573 or www.debra.org .
About Dystrophic Epidermolysis Research Association of America
Founded more than 30 years ago, DebRA of America is the only national non-profit organization dedicated to research and providing supportive services to Epidermolysis Bullosa (EB) patients and their families. There is no cure for Epidermolysis Bullosa and the only treatment is daily wound care, bandaging and pain management. DebRA's programs and services include an EB Nurse Educator, Family Crisis Fund, Wound Care Clearing House, and a New Family Advocate Program.
To learn more about DebRA and Epidermolysis Bullosa, please visit www.DebRA.org or join us on Facebook, www.facebook.com/DebRAofamerica.
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