"Living Well with Spina Bifida" Symposium to Highlight Treatment Options

Top Quote Space is limited for December 4th program at New York- Presbyterian Morgan Stanley Children's Hospital/Columbia University Medical Center. End Quote
  • (1888PressRelease) November 18, 2011 - Parents, caregivers, professionals and individuals with Spina Bifida encouraged to attend Living Well with Spina Bifida: Urological Management for Optimal Health and Independence Symposium on Sunday, December 4, 2011 from 9 a.m. to noon. The event will take place at New York-Presbyterian Morgan Stanley Children's Hospital/Columbia University Medical Center at 3959 Broadway. Renowned urologist Dr. Kenneth Glassberg will lead a panel discussion among members of the hospital's Center for Urodynamics and Incontinence.

    Spina Bifida (SB) is a birth defect of the spine which results in a variety of physical and cognitive challenges. Individuals with SB often face a lifetime of urological issues that require specialized care and intervention. "The goal of this event is to educate parents, professionals and people with SB about the variety treatment options that are available to them," said Spina Bifida Resource Network Executive Director Julia McConnell, "It's easy to be overwhelmed when trying to determine the right method of care, that's why we're proud to present this symposium to help give individuals and families some context and analysis."

    The "Living Well with Spina Bifida" panel will discuss the importance of video urodynamics, alternatives to bladder augmentation, surgical interventions, types of catheters and share insights during a Q&A session. Panelists include:

    Kenneth Glassberg, MD, FAAP, FACS is director of the Division of Pediatric Urology of the New York-Presbyterian Morgan Stanley Children's Hospital where he and his team of medical professionals run a Spina Bifida Center.

    Andrew Combs, RPA-C is a physician assistant with 28 years of experience with urodynamics and the treatment of pediatric voiding disorders. Mr. Combs joined the staff as head of the Center in 2007 and serves as director of the hospital's pediatric urodynamics laboratory.

    Agnes Bayer, RN, CPNP is a certified nurse practitioner in the biofeedback program. Ms. Bayer designed the urodynamics laboratory to be a colorful, welcoming and child-friendly space for children who are going through testing and treatment.

    Daisy Medina-Kreppein, RN, FNP-BC is a family nurse practitioner who brings tremendous experience in working with children and families to the pediatric urology team.

    Jennifer Shore, MA has been with the Spina Bifida Resource Network in various direct support roles for the past 12 years. Her current position as Director of Family Support has allowed her to work with individuals and families in the New York metro area and New Jersey.

    Registration is $10 per person and can be arranged by calling 908-782-7475 or email info ( @ ) thesbrn dot org

    The Spina Bifida Resource Network is the only organization solely dedicated to the thousands of individuals and families living with Spina Bifida in New Jersey, Metro New York and Orange and Sullivan counties of New York. To learn more about Spina Bifida, or the programs of the Spina Bifida Resource Network, visit TheSBRN.org.

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