Act Before Midnight September 30th To Support The Charity Clint Black And Julia Roberts Support

Top Quote Help this four-star charity win $250,000 for rare disease research at leading universities. End Quote
  • Cincinnati, OH-KY-IN (1888PressRelease) September 30, 2010 - Online and text votes are urgently needed in the final days and hours of September to help the International Rett Syndrome Foundation secure a September win in the Pepsi Refresh Challenge so the four-star charity can win $250,000 for rare disease research at leading universities. Clint Black, Julia Roberts and Congressman Steny Hoyer (D-MD) all have personal connections to this rare neurological disorder that robs young girls of their speech and hand use, and all have given their time to help accelerate treatments and a cure of this rare orphan disease. The voting is down to the wire and every vote counts.

    Rett syndrome missed a win in August in the final thirty minutes of voting, and has stayed in the running. Your vote is needed up until midnight eastern on September 30th in a race to help this devastating autism spectrum disorder be able to fund critical research in 2011.

    There are three ways to vote.

    1. Send Text Vote to Pepsi phone 73774 - Type 100842 in the message field to vote

    2. Vote directly from the Pepsi site:

    3. Use the Facebook app

    The International Rett Syndrome Foundation has partnered with other causes competing in the Pepsi Refresh Project who are all focused on offering hope to disadvantaged children with rare diseases or disabilities, such as the Children's Rare Disease Network responsible for the Global Genes Project; the Brendan B McGinnis Congenital CMV Foundation; the Tug McGraw Foundation founded by baseball player Tug McGraw; the Center for Courageous Kids in Alvaton, KY; the National Inclusion Project, Inc in Raleigh, NC; the Arc of Madison County in Richmond, KY; and the 1p36 Deletion Support & Awareness foundation.

    About Rett Syndrome
    Rett syndrome, a neuro-developmental disorder primarily effecting girls, causes problems in the brain responsible for cognitive, sensory, emotional, motor & autonomic function. There are thousands of undiagnosed girls and women world-wide.

    About International Rett Syndrome Foundation
    The mission of IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs and services.

    For more details you can visit

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